2025
Qualitative analysis of pain impact in adult patients with X-linked hypophosphatemia
Nishime N, Theriault C, Feinn R, Macica C. Qualitative analysis of pain impact in adult patients with X-linked hypophosphatemia. JBMR Plus 2025, 9: ziaf012. PMID: 40060917, PMCID: PMC11890110, DOI: 10.1093/jbmrpl/ziaf012.Peer-Reviewed Original ResearchHealth-related quality of lifeQuality of lifeDomains of health-related quality of lifePain self-management interventionShort Form Survey InstrumentX-linked hypophosphatemiaEffective pain management strategiesSelf-management interventionsHealthcare providers' lackHealth-related qualityPain management strategiesExperiences of adultsImprove quality of lifeAge-adjusted differencesSemi-structured interviewsPhysical inactivityProviders' lackQualitative analysis of interviewsHealthcare accessPhysical functionImprove carePhysical therapyEmotional burdenSF-36Healthcare servicesDefining Thresholds for Meaningful Health Status Changes Following Transfemoral Carotid Artery Stenting
Kluger J, Romain G, Mena‐Hurtado C, Grubman S, Pajarillo C, Cleman J, Scierka L, Smolderen K. Defining Thresholds for Meaningful Health Status Changes Following Transfemoral Carotid Artery Stenting. Catheterization And Cardiovascular Interventions 2025, 105: 927-937. PMID: 39789704, DOI: 10.1002/ccd.31410.Peer-Reviewed Original ResearchConceptsMinimal clinically important differenceHealth status changesHealth statusSF-36Visual analog scaleEQ-5DDistribution-based MCIDPhysical component scoreCarotid artery stentingDisease-specific instrumentHealth status improvementTransfemoral carotid artery stentingSymptom statusClinically important differenceTF-CASStatus changesGeneric instrumentsArtery stentingRegistry dataComponent scoresImportant differencePatients no changeStatus improvementAsymptomatic carotid stenosisHealth
2024
Cognition in patients with mild autonomous cortisol secretion at baseline and post-adrenalectomy
Saini J, Nathani R, Singh S, Ebbehoj A, Thangamuthu K, Suresh M, Zhang C, Nevin S, Fell V, Atkinson E, Achenbach S, Stricker N, Bancos I. Cognition in patients with mild autonomous cortisol secretion at baseline and post-adrenalectomy. European Journal Of Endocrinology 2024, 191: 636-645. PMID: 39671564, PMCID: PMC11662234, DOI: 10.1093/ejendo/lvae157.Peer-Reviewed Original ResearchConceptsMild autonomous cortisol secretionReference subjectsT-scorePost-adrenalectomyBeck Depression InventoryComposite T-scoreAutonomous cortisol secretionSF-36Urine steroid profileImpact of adrenalectomyFrailty indexCross-sectional studyShort Form-36Longitudinal cohort studyNational Institutes of Health Toolbox Cognition BatteryCohort studyMultivariate analysisSteroid profileLower cognitionCortisol secretionPatientsAssociated with lower cognitionStandardized T scoresAdrenalectomyCognitive battery12437 Impact Of Wearable Brain Sensing Meditation Device On Quality Of Life In Patients Recovering From Hypercortisolism Following Surgical Intervention: A Prospective Longitudinal Cohort Study
Saini J, Fard B, Suresh M, Sandooja R, Hleibiehova Y, Atkinson E, Achenbach S, Bancos I. 12437 Impact Of Wearable Brain Sensing Meditation Device On Quality Of Life In Patients Recovering From Hypercortisolism Following Surgical Intervention: A Prospective Longitudinal Cohort Study. Journal Of The Endocrine Society 2024, 8: bvae163.217. PMCID: PMC11455429, DOI: 10.1210/jendso/bvae163.217.Peer-Reviewed Original ResearchQuality of life of patientsSF-36Quality of lifeLife of patientsIntervention groupSF-36 mental component scoreSF-36 physical componentReference cohortGlucocorticoid withdrawal syndromeProspective longitudinal cohort studyMental component scoreShort Form-36Longitudinal cohort studySymptoms of fatiguePhysical functionAssociated with improvementsFollow-upProspective longitudinal studyEndogenous hypercortisolismBody painComponent scoresImprove patientCohort studyLimited interventionNo significant improvement7829 Hydrocortisone Vs Prednisone During Recovery Following Surgical Cure For Endogenous Hypercortisolism: A Longitudinal Observational Study
Sandooja R, Saini J, Garcia R, Zhang C, Achenbach S, Atkinson E, Van Gompel J, Young W, Bancos I. 7829 Hydrocortisone Vs Prednisone During Recovery Following Surgical Cure For Endogenous Hypercortisolism: A Longitudinal Observational Study. Journal Of The Endocrine Society 2024, 8: bvae163.206. PMCID: PMC11454907, DOI: 10.1210/jendso/bvae163.206.Peer-Reviewed Original ResearchGlucocorticoid withdrawal syndromeMild autonomous cortisol secretionSeverity of hypercortisolismTreated with hydrocortisoneEndogenous hypercortisolismSurgical cureCushing's syndromeSF-36Clinical severityPost-surgeryFemale sexPatients treated with prednisoneSeverity scorePatients treated with hydrocortisoneSF-36 mental component scoreQuality of lifeSF-36 physical component scoreEtiology of hypercortisolismAutonomous cortisol secretionClinical severity scoreBaseline clinical severityConstellation of symptomsWeeks post-surgeryPhysical component scoreGlucocorticoid replacementP170 Ixekizumab significantly improved quality of life and joint pain in patients with psoriatic arthritis, nail disease and distal interphalangeal joint involvement from SPIRIT-H2H
Ritchlin C, Kavanaugh A, Kristensen L, Merola J, Strober B, Lisse J, Bolce R, Sapin C, Pustizzi J, McGonagle D. P170 Ixekizumab significantly improved quality of life and joint pain in patients with psoriatic arthritis, nail disease and distal interphalangeal joint involvement from SPIRIT-H2H. Rheumatology 2024, 63: keae163.209. DOI: 10.1093/rheumatology/keae163.209.Peer-Reviewed Original ResearchHealth Assessment Questionnaire-Disability IndexDermatology Life Quality IndexSF-36Quality of lifeJoint painMental and Physical Component Summary scoresQoL measuresConsulting feesUCB PharmaPhysical component summary scoreHealth care providersComponent summary scoresSF-36 MCSSF-36 PCSIXE-treated patientsClinically important improvementNail Psoriasis Severity IndexADA-treated patientsDistal interphalangeal jointDistal interphalangeal joint involvementDermatology Life Quality Index scoresStatistically significant improvementVisual analogue scaleCare providersJoint involvementPredictors of Health-Related Quality of Life Among Women Participating in an Appointment-Based Cardiac Rehabilitation Program
Wright C, Fournier S, Deng Y, Meng C, Tucker K, Spatz E, Lichtman J, Zhu C, Dreyer R, Oen-Hsiao J. Predictors of Health-Related Quality of Life Among Women Participating in an Appointment-Based Cardiac Rehabilitation Program. The Journal Of Cardiovascular Nursing 2024, 40: 64-73. PMID: 38595128, DOI: 10.1097/jcn.0000000000001096.Peer-Reviewed Original ResearchHealth-related quality of lifeCR programSF-36 scoresSF-36Quality of lifeCardiac rehabilitationPredictors of health-related quality of lifeYale New Haven HealthShort-Form General Health SurveyCardiac rehabilitation programGeneral Health SurveyHealth-related qualityCardiovascular diseaseMultivariate linear regression modelChronic obstructive pulmonary diseaseMeasure HRQoL.CR adherenceCR entryPredictors of improvementRehabilitation programHealth outcomesHealth SurveyEvaluate sex differencesObstructive pulmonary diseaseSocioeconomic statusWCN24-1776 NEFECON EFFECT ON QUALITY OF LIFE IN PATIENTS WITH IgAN: SF-36 RESULTS FROM THE PHASE 3 NeFIgArd TRIAL
Barratt J, Kristensen J, Stone A, Floege J, Tesař V, Trimarchi H, Zhang H, Eren N, Paliege A, Reich H, Rovin B, Lafayette R. WCN24-1776 NEFECON EFFECT ON QUALITY OF LIFE IN PATIENTS WITH IgAN: SF-36 RESULTS FROM THE PHASE 3 NeFIgArd TRIAL. Kidney International Reports 2024, 9: s174. DOI: 10.1016/j.ekir.2024.02.357.Peer-Reviewed Original ResearchSF-36 resultsSF-36Decompression Alone Versus Interspinous/Interlaminar Device Placement for Degenerative Lumbar Pathologies: Systematic Review and Meta-Analysis
Pennington Z, Lakomkin N, Mikula A, Elsamadicy A, Astudillo Potes M, Fogelson J, Grossbach A, Elder B. Decompression Alone Versus Interspinous/Interlaminar Device Placement for Degenerative Lumbar Pathologies: Systematic Review and Meta-Analysis. World Neurosurgery 2024, 185: 417-434.e3. PMID: 38508384, DOI: 10.1016/j.wneu.2024.03.054.Peer-Reviewed Original ResearchPatient-reported outcomesDecompression-aloneDegenerative lumbar pathologyPain improvementInterlaminar deviceLumbar pathologySF-36 physical component scoreLeg pain improvementDisease-specific patient-reported outcomeBack pain improvementPhysical component scorePhysical function scoresTotal care costsEQ-5D scoresTotal treatment costsSymptom severity scoresReoperation ratePerioperative complicationsConventional surgerySF-36Care costsFollow-upComponent scoresSeverity scoreDevice placementDyadic Yoga for Head and Neck Cancer Patients Undergoing Chemoradiation and their Family Caregivers
Milbury K, Rosenthal D, Li Y, Ngo-Huang A, Mallaiah S, Yousuf S, Fuller C, Lewis C, Bruera E, Cohen L. Dyadic Yoga for Head and Neck Cancer Patients Undergoing Chemoradiation and their Family Caregivers. Journal Of Pain And Symptom Management 2024, 67: 490-500. PMID: 38447621, PMCID: PMC11349719, DOI: 10.1016/j.jpainsymman.2024.02.565.Peer-Reviewed Original ResearchEmergency department visitsHead and neck cancerWaitlist controlHead and neck cancer patientsFamily caregiversYoga groupDepartment visitsYoga therapyHospital admissionPatient emergency department visitsPatient's last daysActive study participantsUnplanned hospital admissionsFeeding tube placementWaitlist control groupSupportive care strategiesQuality of lifeDyadic yogaYoga interventionYoga programCaregiver efficacyPilot RCTSF-36Care strategiesSymptom interference
2023
Three-Year Safety, Tolerability, and Health-Related Quality of Life Outcomes of Adjuvant Osimertinib in Patients With Resected Stage IB to IIIA EGFR-Mutated NSCLC: Updated Analysis From the Phase 3 ADAURA Trial
John T, Grohé C, Goldman J, Shepherd F, de Marinis F, Kato T, Wang Q, Su W, Choi J, Sriuranpong V, Melotti B, Fidler M, Chen J, Albayaty M, Stachowiak M, Taggart S, Wu Y, Tsuboi M, Herbst R, Majem M. Three-Year Safety, Tolerability, and Health-Related Quality of Life Outcomes of Adjuvant Osimertinib in Patients With Resected Stage IB to IIIA EGFR-Mutated NSCLC: Updated Analysis From the Phase 3 ADAURA Trial. Journal Of Thoracic Oncology 2023, 18: 1209-1221. PMID: 37236398, DOI: 10.1016/j.jtho.2023.05.015.Peer-Reviewed Original ResearchConceptsThree-year safetyAdverse eventsAdjuvant osimertinibStage IBWeek 12Treatment completionCommon adverse eventsMost adverse eventsResected stage IBSignificant efficacy benefitDisease-free survivalNew safety signalsSF-36 surveyHealth-related qualityInterstitial lung diseaseMental component summaryTotal exposure durationADAURA trialWeek 24Component summaryEfficacy benefitsOsimertinib treatmentSF-36Lung diseaseSafety signals
2022
Health-related quality of life among women aging with and without HIV in Peru
Cabrera DM, Chen M, Cornejo MP, Pinedo Y, Garcia PJ, Hsieh E. Health-related quality of life among women aging with and without HIV in Peru. PLOS ONE 2022, 17: e0269000. PMID: 35679332, PMCID: PMC9182248, DOI: 10.1371/journal.pone.0269000.Peer-Reviewed Original ResearchConceptsHealth-related qualityMental componentPhysical activityCell countLower health-related qualityShort Form Health SurveyComponent scoresHRQoL of womenLarge HIV clinicMental component scorePhysical component scoreForm Health SurveyStatistical significanceSummary component scoresCross-sectional studyRegression analysisChronic comorbiditiesHIV clinicHIV severitySF-36Mean ageRole limitationsPhysical functioningClinical dataHealth SurveySodium Tetradecyl Sulphate Sclerotherapy for Lateral Malleolar Bursitis of the Ankle
Yoon Y, Park J, Kim J, Han S, Shin S, Lee J, Park K. Sodium Tetradecyl Sulphate Sclerotherapy for Lateral Malleolar Bursitis of the Ankle. Clinics In Orthopedic Surgery 2022, 14: 289-296. PMID: 35685968, PMCID: PMC9152902, DOI: 10.4055/cios21182.Peer-Reviewed Original ResearchConceptsLateral malleolar bursitisSodium tetradecyl sulphateSF-36 physical component scoreSF-36Bursal sacEvaluate clinical outcomesResponse to treatmentAspiration of fluidSoft tissue swellingPhysical component scoreComplete responsePartial responseConsecutive patientsTransient hyperpigmentationConservative treatmentClinical outcomesShort Form SurveyFollow-upSclerotherapySide effectsPatientsInjection siteTetradecyl sulphateSoft tissueBursitis
2021
Patient-Reported Outcome Measures in Symptomatic, Non–Limb-Threatening Peripheral Artery Disease: A State-of-the-Art Review
Rymer JA, Narcisse D, Cosiano M, Tanaka J, McDermott MM, Treat-Jacobson DJ, Conte MS, Tuttle B, Patel MR, Smolderen KG. Patient-Reported Outcome Measures in Symptomatic, Non–Limb-Threatening Peripheral Artery Disease: A State-of-the-Art Review. Circulation Cardiovascular Interventions 2021, 15: e011320. PMID: 34937395, DOI: 10.1161/circinterventions.121.011320.Peer-Reviewed Original ResearchConceptsPatient-reported outcome measuresPeripheral artery diseaseDisease-specific patient-reported outcome measureSymptomatic peripheral artery diseaseArtery diseaseOutcome measuresSelection of PROMsDisease-specific Peripheral Artery QuestionnairePeripheral Artery QuestionnaireLimb-threatening ischemiaValidation of PROMsVascular QualityImpairment QuestionnaireSF-36Life QuestionnaireInclusion criteriaCurrent evidenceEffects of diseaseHealth outcomesEuropean QualityClinical goalsLiterature searchPatientsDiseasePsychometric validation
2019
Should Chopart Amputation be Performed in Diabetic Foot Ulcer Patients?
Brodell J, Baumhauer J, DiGiovanni B, Flemister A, Ketz J, Oh I. Should Chopart Amputation be Performed in Diabetic Foot Ulcer Patients? Foot & Ankle Orthopaedics 2019, 4: 2473011419s00118. PMCID: PMC8696696, DOI: 10.1177/2473011419s00118.Peer-Reviewed Original ResearchChopart amputationSyme amputationAmputation patientsRevision amputationSF-36Patient cohortExact testWound healingOutcomes Measurement Information System (PROMIS) instrumentsDiabetic foot ulcer patientsMinor post-operative complicationsFoot ulcer patientsCurrent Procedural Terminology codesDiabetic foot infectionsPost-operative complicationsBelow knee amputationBody mass indexJudicious patient selectionUnpaired Student's t-testProcedural Terminology codesFisher's exact testExtent of infectionStudent's t-testFoot infectionsMedical comorbidities
2018
Quality of life in patients with hoarding disorder
Tolin DF, Das A, Hallion LS, Levy HC, Wootton BM, Stevens MC. Quality of life in patients with hoarding disorder. Journal Of Obsessive-Compulsive And Related Disorders 2018, 21: 55-59. PMID: 31595215, PMCID: PMC6783256, DOI: 10.1016/j.jocrd.2018.12.003.Peer-Reviewed Original ResearchRole limitationsGeneral healthAffective symptomsSex-matched healthy control participantsPoorer health-related QoLHC participantsForm Health SurveyHealth-related QoLHealth-related qualityMedical Outcomes StudySocial functioningQuality of lifeComorbid affective symptomsHealthy control participantsEmotional problemsHD symptom severitySF-36Primary diagnosisHealth SurveyLower QoLOutcome studiesQOL domainsSymptom severityBattery of questionnairesPatients
2016
Do measures of surgical effectiveness at 1 year after lumbar spine surgery accurately predict 2-year outcomes?
Adogwa O, Elsamadicy AA, Han JL, Cheng J, Karikari I, Bagley CA. Do measures of surgical effectiveness at 1 year after lumbar spine surgery accurately predict 2-year outcomes? Journal Of Neurosurgery Spine 2016, 25: 689-696. PMID: 26722957, DOI: 10.3171/2015.8.spine15476.Peer-Reviewed Original ResearchConceptsTransforaminal lumbar interbody fusionLumbar spine surgeryAnterior lumbar interbody fusionLong-term outcomesLateral interbody fusionLumbar interbody fusionSpine surgeryInterbody fusionSurgical effectivenessOutcome measuresSF-36 physical component summary scorePhysical component summary scoreLongitudinal assessmentPatient-reported outcome instrumentsAchievement of MCIDMultiinstitutional prospective studyVAS leg painComponent summary scoresClinical outcome dataPatient-centered measuresLogistic regression modelingIneffective patient careInstitutional registryOutcomes RegistrySF-36
2014
Longitudinal Evaluation of PROMIS-29 and FACIT-Dyspnea Short Forms in Systemic Sclerosis
Hinchcliff ME, Beaumont JL, Carns MA, Podlusky S, Thavarajah K, Varga J, Cella D, Chang RW. Longitudinal Evaluation of PROMIS-29 and FACIT-Dyspnea Short Forms in Systemic Sclerosis. The Journal Of Rheumatology 2014, 42: 64-72. PMID: 25362656, PMCID: PMC4480645, DOI: 10.3899/jrheum.140143.Peer-Reviewed Original ResearchConceptsSystemic sclerosisPROMIS-29HAQ-DIHealth statusSF-36 physical component summaryShort formChange scoresSF-36 rolePhysical component scaleSF-36 scoresOutcomes Measurement Information SystemPhysical component summarySF-36 PCSPhysical function scalePhysical function assessmentMeasurement Information SystemMRSS improvementComponent summarySF-36Spearman correlation coefficientPhysical functionPhysical functioningHealth profileFunction assessmentFunctional limitations
2013
Weight bias internalization, depression, and self‐reported health among overweight binge eating disorder patients
Pearl RL, White MA, Grilo CM. Weight bias internalization, depression, and self‐reported health among overweight binge eating disorder patients. Obesity 2013, 22: e142-e148. PMID: 24039219, PMCID: PMC3954963, DOI: 10.1002/oby.20617.Peer-Reviewed Original ResearchConceptsWeight Bias Internalization ScaleBeck Depression Inventory-IIWeight bias internalizationSelf-reported healthBDI scoresOverweight patientsSF-36Depressive symptomsShort Form-36 Health SurveyPhysical healthPoor self-reported healthSF-36 scalesCross-sectional studyHigher weight bias internalizationMental health outcomesNegative mental health outcomesOverweight bingeWBIS scoresHealth SurveyDisorder patientsHealth outcomesInventory-IIPatientsPotential mediatorsRegression analysisOP0115 Efficacy of Belimumab in Systemic Lupus Erythematosus Patients with High Disease Activity in Key Organ Systems: Bliss Sub-Populations
Schmitt C, Roth D, Birch H, Kleoudis C, De Vries J. OP0115 Efficacy of Belimumab in Systemic Lupus Erythematosus Patients with High Disease Activity in Key Organ Systems: Bliss Sub-Populations. Annals Of The Rheumatic Diseases 2013, 72: a90. DOI: 10.1136/annrheumdis-2013-eular.320.Peer-Reviewed Original ResearchSF-36 physical component scoreEfficacy of belimumabPhysician global assessmentHigh disease activityPhysical component scoreSLE patientsSELENA-SLEDAIDisease activityMean physician’s global assessmentSystemic lupus erythematosus patientsSF-36Treating SLE patientsDisease activity groupLupus erythematosus patientsSLE Responder IndexWeeks of treatmentDisease activity criteriaBelimumab doseFACIT-Fatigue scoresLow complementDouble-blindPlus standard carePrimary endpointSecondary endpointsDisease flare
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